The European Patients’ Forum and the Data Saves Lives project have developed a practical resource that provides a comprehensive overview of the European Health Data Space (EHDS) and its implications for patients and patient organisations. It aims to help individuals understand how the EHDS will affect access to and control over electronic health data across the EU. The toolkit outlines key provisions of the EHDS, including patient rights, data privacy, and the roles of patient representatives in this new framework. It also offers practical guidance on navigating the EHDS and engaging with the opportunities it presents.

By exploring this toolkit, you'll gain valuable insights into the EHDS and how it can empower patients to take control of their health data, ensuring better continuity of care and participation in health research and policy-making.