The European Patients’ Forum and the Data Saves Lives project have developed a practical resource that offers a comprehensive introduction to the value and responsible sharing of health data. Designed for patient groups and health advocates, it provides practical guidance on engaging with digital health tools and initiating health data initiatives. The resource includes templates for webinars and surveys, as well as a risk assessment tool to support informed decision-making.

By exploring this toolkit, you'll gain insights into how health data can enhance healthcare outcomes and how to effectively communicate these concepts within your community.