Name of the organisation
Language of the training
Geographical scope
Training delivery

EHC logo

European Haemophilia Consortium

The EHC aims to ensure access to education for patients and patient organisations to engage in health technology assessment (HTA). We invite all patients with rare bleeding disorders to enrol in this course. The programme may also act as a quick reference guide for students, researchers, and HTA agencies to begin to understand the issues related to bleeding disorders and how to evaluate them.

Training Overview

 The training allows participants:
  • Learn how to analyse various treatments and assess their value.
  • Understand how HTA bodies assess treatments and ways to impact this evaluation.
  • Help their government in ensuring treatment access for patients with bleeding disorders.
  • Explore ways to balance innovative treatments with budget limitations.

The programme has the following modules:

  • Module 1 – Introduction to Health Economics
  • Module 2 – Health Technology Assessment – Understanding Outcomes
  • Module 3 – HTA in Bleeding Disorders – Applied Cost-Effectiveness Analysis and Budgetary Impact
  • Module 4 – Payment Models
Participants can easily navigate the modules on the online platform and learn at their own pace. In each module, they find short pre-recorded videos with subtitles, covering the main concepts of health economics in bleeding disorders and some questions to review understanding. Some complementary materials are also added to widen concepts and knowledge.
 
 
After applying, successful applicants are informed by email on a rolling basis. The course is held every year in September and October.
 Visit Training Website
Delivery Online
Language English
Targeted At:
Patients and patients representatives
Caregivers
Academic/Researcher representatives
Industry representatives
Healthcare professional
Regulatory agency representative

Training for different stakeholders

N/A

Geographical Scope:

Applicants from the WHO European region are welcome to register. Applicants from other regions may be accepted, too.

Cost of the training:
The participation has no cost
Clinical Focus:

The focus of the training is in Congenital, Hereditary, and Neonatal Diseases and Abnormalities

EUPATI sweden logo

EUPATI Sweden

EUPATI Sweden's on-line training platform is open and free-of-charge. Courses include introduction to medicines R&D, medtech, regulatory affairs, HTA, patient involvement and more.

Training Overview

EUPATI Sweden's on-line training platform is open and free-of-charge. Courses include introduction to medicines R&D, medtech, regulatory affairs, HTA, patient involvement and more.

 Visit Training Website
Delivery Online
Language Swedish
Targeted At:
Patients and patients representatives
Academic/Researcher representatives

Training for different stakeholders

EUPATI Sweden has also a training for researchers on patient involvement. It is an in-person training and designed to be delivered to research teams looking to involve patients in their research.

Geographical Scope:

Sweden

Cost of the training:
EUPATI Sweden's on-line training platform is open and free-of-charge
Clinical Focus:

The training is non-disease specific 

World Duchenne Organization

The Academy provides online training for Duchenne and Becker muscular dystrophy (DMD/BMD) patient advocates.

Training Overview

Over the course of 2 days, Duchenne Patient Academy attendees will listen to speakers and attend panel discussions moderated by experts in their respective fields. As with last year, attendees have the opportunity to become involved in the dialogue and share their experiences.

Some of the topics covered during the training are Medicines R&D, Policy, SoC, Capacity Building, Fundraising for POs and other

 Visit Training Website
Delivery Hybrid
Language English
Targeted At:
Patients and patients representatives

Training for different stakeholders

Geographical Scope:

This is a global training

Cost of the training:
-
Clinical Focus:

The training is focused on Duchenne and Becker muscular dystrophy (DMD/BMD)

INVOLV

The goal of INVOLV is to professionalize patient representatives and patient organizations to make them more capable to get involved in improving healthcare, welfare and scientific research.

Training Overview

The EUPATI-NL training is for patient representatives in the field of medicine research. It contains general trainings about participation in scientific research (1day) or about assessing research proposals as a patient representative (2 days).

 Visit Training Website
Delivery Hybrid
Language Dutch
Targeted At:
Patients and patients representatives
Academic/Researcher representatives
Healthcare professional
Regulatory agency representative

Training for different stakeholders

INVOLV provides trainings for both patient representatives / organizations as well as researcher / research groups, and funding agencies.

Geographical Scope:

The training is based in The Netherlands

Cost of the training:
The costs are free for patient representatives coming from a specific patient organisations as our services are free (funded by government) for patient organisations.
Clinical Focus:

The training is non-disease specific 

Greek Patient's Association

The Greek Patients' Association is creating a cluster of multifaceted educational programmes aiming to empower the community and create patient experts. This cluster is called Patients' Academy and it includes the EUPATI Academy and the Digital Academy. The EUPATI Academy will be an adaptation of the EUPATI Patient Expert Training Programme in greek and the Digital Academy is a short term (2,5 month) training on digital health.

Training Overview

The Patient Academy with all its trainings will be held on a dedicated LMS platform. The Digital Academy will last from October to December 2025 following a hybrid model. This training is free of charge and it is open for Greek Patients' Association members and other patient associations in Greece. Some of the key topics of this training are the following: 

  • Use of digital health applications such as the myHealth app and electronic prescriptions
  • The role of AI in healthcare
  • Legal and ethical considerations in the use of health data
  • Mobile and web technologies for self-management of disease
  • The rights of healthcare service recipients in the new digital environment

EUPATI Academy is an adaptation of the original EUPATI. Open to Members of the Greek Patients’ Association, registered members of the Members Associations, other patient representatives and carers, pharmaceutical industry and academics, interested in Medicines R&D and patient engagement. Registration on the EUPATI Greece website, requires submitting a CV, motivation letter and a letter of recommendation from the organisation each individual is registered to. 50 participants per cohort.

  • 12 months of training
  • 270 hours of online learning
  • Two 3 day training events (one online, one in person)

Getting started 
Introduction to Medicines R&D 
Non-Clinical Development 
Clinical Development 
Regulatory Affairs 
Health Technology Assessment (HTA)
Medical Devices
Digital Health

 Visit Training Website
Delivery Hybrid
Language Greek
Targeted At:
Patients and patients representatives
Academic/Researcher representatives
Industry representatives
Healthcare professional

Training for different stakeholders

Digital Academy (pilot run 2025) is solely for patients, patient representatives and carers.
The EUPATI Academy will be available to industry and academy representatives as well

Geographical Scope:

The training is focused on the Greek national context

Cost of the training:
Free of charge for GPA Members and their members €150 reduced fee for patient representatives of other organisations € 500 for the pharmaceutical industry and academics Accommodation and tickets are included
Clinical Focus:

The training is non-disease specific

IPPOSI logo

IPPOSI

Patient Capacity Building Training aims to build the capacity, confidence, and leadership skills of patient advocates in Ireland by providing access to inclusive training materials, expert advice, and a repository of resources.

Training Overview

The topics covered are chosen based on a survey of patient/carer members, most online and all free

For example for 2025 the following areas have been covered:

EU HTA Regulation webinar; The use of AI in Healthcare in Ireland, the Citizen Jury verdict; PPI toolkit – landscape, making a start, examples of best practice; Creating a PPI (Patient and Public Involvement) CV using Canva; Understanding and Influencing the Oireachtas; Critical Reading; Clinical Trials Information System (CTIS) Public Portal

 Visit Training Website
Delivery Online
Language English
Targeted At:
Patients and patients representatives
Caregivers

Training for different stakeholders

N/A

Geographical Scope:

The training is focused on the national context of Ireland

Cost of the training:
The training is free for patients
Clinical Focus:

The training is non-disease specific 

 

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