Patients and patient representatives are invited to collaborate with pharmaceutical professionals, researchers, regulators and HTA representatives in the research and development of a medicine. There are various ways in which patients can be engaged, and throughout this lessons, you will learn more about the steps and processes where patient involvement adds value. It will also explain in details the codes of conduct and framework for these interactions.
The Roadmap of Patient Involvement was developed and published by EUPATI authors in 2016-2018. It describes the various steps and milestones along the R&D spectrum, and also suggests certain concrete steps and processes where patient involvement not only makes sense but also actively adds value. While not exhaustive, the list of tasks is also divided according to the level of expertise on the side of the participating patient suggested for the given task: from medium to high expertise.
The Roadmap is a simple but practical tool that can guide the work of patient experts, patient engagement professionals, researchers and anyone who would like to explore and understand how patients can contribute to better research, and more meaningful and relevant outcomes.
